| Personal Genome Project |
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The project will publish the images, etc. All data will be freely available over the Internet , so that researchers can test various hypotheses about the relationships among Genotype , Environment and Phenotype . All data will be published along with the volunteer's name (since full anonymity can never be guaranteed anyway). An important part of the project will be the exploration of the resulting risks to the participants, such as possible discrimination by insurers and employers if the genome shows a predisposition for certain diseases. The Harvard Medical School Institutional Review Board requested that the first set of volunteers included the PGP director and other diverse stakeholders in the scientific, medical, and social implications of personal genomes, because they are well positioned to give highly Informed Consent . As Sequencing Technology becomes cheaper, and the societal issues mentioned above are worked out, it is hoped that a large number of volunteers from all walks of life will participate. The long-term goal is that every person have access to his or her Genotype to be used for personalized medical decisions. Of the first ten volunteers, these nine have given permission to release their names: #Misha Angrist, Duke Institute for Genome Sciences and Policy {Link without Title} #Keith Batchelder, Genomic Healthcare Strategies {Link without Title} # George Church , Harvard # Esther Dyson , EDventure Holdings #Rosalynn Gill-Garrison, Sciona {Link without Title} #John Halamka, Harvard Medical School {Link without Title} #Stan Lapidus, Helicos BioSciences {Link without Title} #Kirk Maxey, Cayman Chemical {Link without Title} # James Sherley , Boston stem cell researcher. EXTERNAL LINKS AND SOURCES
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